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The Need for and Gaps in Provision of Children’s Palliative Care Globally
Pages 1-12
Punto di Riferimento
per Medici e Operatori Sanitari
per Medici e Operatori Sanitari
LIBRERIA STUDIUM
Children’s Palliative Care: An International Case-Based Manual
Downing
Editore
Springer
Anno
2020
Pagine
290
ISBN
9783030273743
47,00 €
DA SCONTARE
This manual enables individuals working in children’s palliative care (CPC) globally to learn through engaging real-world cases. The aim is to provide a clinical case-based resource that is globally relevant and accessible to those working in CPC. Drawing on case histories from around the world that reflect key issues and elements of CPC, it provides a practical approach grounded in experience. It addresses multidisciplinary care in the management of children and their families; discusses cases from an international perspective, and shares examples from a variety of countries, utilising cases across a range of ages and conditions, demonstrating holistic care. It represents the first case-based manual on global CPC and is endorsed and promoted by the International Children’s Palliative Care Network (ICPCN).
Children’s palliative care is a rapidly developing field, both in the UK and internationally. The provision of CPC varies considerably, with provision often being insufficient, and over 65% of countries having no recognised CPC service provision whatsoever. As such, while there are an estimated 21.6 million children who require palliative care, in many areas of the world, CPC is poor or non-existent, and children are treated like little adults without their distinctive needs being recognised or understood. There is also a dearth of literature on CPC, hence this clinical case-based manual fills a gap in the market, and is aimed at a global audience, making it a unique text in the field.
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Universal Health Coverage and Serious Health-related Suffering: A Case for Children and Young People
Pages 13-23
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Children’s Palliative Care Across a Range of Conditions, Settings and Resources
Pages 25-37
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Holistic Assessment
Pages 39-49
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Communication with Children and Their Families
Pages 51-63
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Assessment, Prevention, and Treatment of Pain in Children with Serious Illness
Pages 65-94
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Respiratory Care
Pages 95-109
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Gastrointestinal Symptoms
Pages 111-123
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Fatigue
Pages 125-131
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Nutritional Support
Pages 133-144
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Psychological Care and Distress
Pages 145-156
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Spiritual Care
Pages 157-165
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Social and Cultural Support
Pages 167-176
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End-of-Life Care
Pages 177-188
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Supporting the Family at the Time of Death
Pages 189-199
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Anticipatory Grief and Bereavement Support
Pages 201-210
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Perinatal and Neonatal Palliative Care
Pages 211-221
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Supporting the Adolescent and Young Adult
Pages 223-234
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Managing Ethical Issues
Pages 235-248
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Collaborative Working and Use of National, Regional and International Networks
Pages 249-259
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Empowering the Team Through Education
Pages 261-272
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Integrating Research into Care
Pages 273-284
